Correlation of X-Linked Dystonia-Parkinsonism Severity to the Quality of Life of Primary Caregivers in an Outpatient Clinic in the Philippines

Author(s)	Jose Manuel Geotina, Cid Czarina Diesta, Jed Noel Ong, Paulo Lacdao Cataniag
Country	Philippines
Abstract	X-linked dystonia-parkinsonism (XDP) is an inherited, progressive movement disorder characterized by a combination of dystonia (involuntary muscle contractions that cause repetitive movements or abnormal postures) and parkinsonism (symptoms similar to Parkinson’s disease, such as tremors, rigidity, and bradykinesia). Patients in advanced stages of XDP become dependent upon family members and require permanent help from caregivers. This leads to a decrease in the quality of life of caregivers. The primary objective of this study was to investigate the impact of X-linked dystonia Parkinsonism (XDP) severity of patients being seen at an outpatient clinic in the Philippines on the quality of life (QoL) of patients’ respective primary caregivers. The study demonstrated a strong negative correlation between disease severity and caregiver well-being. The significant associations with lifestyle factors such as diet and physical activity further emphasize the need for comprehensive support systems addressing both medical and psychosocial needs.
Keywords	XDP, Quality of Life, Caregivers
Field	Medical / Pharmacy
Published In	Volume 7, Issue 1, January-February 2025
Published On	2025-02-20
DOI	https://doi.org/10.36948/ijfmr.2025.v07i01.37320
Short DOI	https://doi.org/g85ssx

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