“Beyond Identification: UDID and Disability Entitlements Among Families of Children with Autism in Lucknow, India

Akanksha Tiwari

“Beyond Identification: UDID and Disability Entitlements Among Families of Children with Autism in Lucknow, India

Author(s)	Ms. Akanksha Tiwari
Country	India
Abstract	The UDID card is a crucial way to identify people with disabilities, and help them get access to the benefits they're eligible for in India. However, having a UDID card doesn't mean you will be able to get what you need from the government, or even have enough money to take care of your family if your child has Autism Spectrum Disorder (ASD). This study looked at whether families of children with ASD in Lucknow, Uttar Pradesh had UDID cards; what kind of help they thought they received from the government; and whether they were able to find health insurance that would pay for their child's ASD-related care. We used a quantitative cross-sectional research design to collect primary data using a structured questionnaire with parents/caregivers. We used descriptive statistics (frequencies and percentages) to analyze the responses. Of the 167 families who answered the questions, 59.3% said their child had a UDID card, and 40.7% said their child did not have one. Also, 61.7% of the families said the government schemes did not help lower their costs, and 6.0% didn't know about the schemes. Lastly, 59.9% of the families said their health insurance didn't cover ASD-related care, and 37.1% said their health insurance covered some of the costs. Based on these results, we can see that there may be problems in connecting people with disabilities with the services they deserve, as well as providing adequate financial protection for families of children with ASD. We believe that we need to increase awareness about UDID cards; simplify getting the services you deserve; provide better information about health insurance; and provide better support systems for families trying to navigate disability services. In addition, we believe that we need to do more than just identify people with disabilities if we want to create inclusive environments where everyone receives the benefits they deserve.
Keywords	Keywords: Autism Spectrum Disorder (ASD), Unique Disability ID (UDID), certification of disability, welfare programs/schemes, health care coverage (insurance), rights and benefits of people with disabilities (disability entitlements), India.
Field	Sociology > Philosophy / Psychology / Religion
Published In	Volume 8, Issue 5, September-October 2026
Published On	2026-10-17

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“Beyond Identification: UDID and Disability Entitlements Among Families of Children with Autism in Lucknow, India

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